Hope for Christmas

Unfortunately, I’m not a stranger to health issues. In fact, that is what ultimately led to my career in wellness in 2008. I know firsthand the importance of being healthy in body, mind, and spirit. Anytime I find an area of wellness (i.e. social, environmental, creative) where I am lacking, then I try to find ways I can improve in that area. It’s important to be balanced. It does take work and I’m far from perfect, but I won’t give up as I know being mentally and physically well are worth it.

Since my diagnosis of dermatomyositis last April, I have dealt with a whole new set of challenges. The symptoms of this condition are as mysterious as how it originated. While I am still practicing self-care and wellness in my life, the task can be arduous at times. I think one of the most difficult challenges I’ve endured is how my exercise routine has been curtailed. Having been athletic my entire life, my activity level has always been more on the extreme side. It’s what I thrive on. This has all changed since dermatomyositis crept into my life.

I try not to allow this illness to consume me, but some days are more difficult than others. I grow increasingly frustrated as time goes on, however, I’m not one to sit by and accept that this is my new normal. I am a former patient of the Mayo Clinic so I will never hesitate to go the extra mile, literally and figuratively, to receive the best care. I recently requested a referral to Vanderbilt and was told it would be mid-July before I could see a specialist. (This was one of the shorter wait times compared to other places I contacted.) Naturally, I was feeling very discouraged by this news. I thought there is no way I can wait this long to seek further care for this condition.

Fortunately, I have a very good friend who has a connection at Vanderbilt. To make a long story short, I will see a specialist on December 20. And, not only that, I get to see someone who specializes in myositis and is even part of a research team for this condition. Merry Christmas to me! Hope is the best gift I could ask for. I will make the trek down to Nashville next week and share my story with an expert. This is definitely the start of something positive and has given me hope as I close out what has been a taxing year. (Dr. Erin Wilfong is the doctor who will be seeing me: https://medicine.vumc.org/department-directory/Erin-M-Wilfong). So far my experience with Vanderbilt has been nothing but promising.

Praying I find answers and the proper treatment to help ease my symptoms which are innumerable. If you think about it, please send positive thoughts along next Wednesday morning. I will post another blog sometime after my visit to Vanderbilt. Happy Holidays!

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